Effective Date: 1-17-2025
Overview
The CryoRegistry (“we,” “our,” or “the Registry”), a project of Biostasis Technologies, is committed to protecting your privacy and ensuring the confidentiality of the information you provide. This Privacy and Data Sharing Policy outlines how we collect, use, share, and protect your data in compliance with the General Data Protection Regulation (GDPR) and other pertinent data protection laws.
Data Collection and Usage
The CryoRegistry collects data from registrants for the following purposes:
- Communication: To contact registrants with updates, resources, and other information related to Biostasis Technologies (BT), its partner organizations, and individuals working in alignment with BT’s mission.
- Content Distribution: To distribute content on behalf of Biostasis Technologies and its partner organizations.
- Registry Maintenance: To maintain an accurate and secure registry of individuals, organizations, or entities relevant to the cryonics community.
Data Sharing Policy
- No Sale of Data: The CryoRegistry will never sell your data to third parties.
- Third-Party Sharing: Data will not be shared with any third party without the explicit consent of the registrant.
- Non-Commercial Content Distribution: Individuals or organizations wishing to distribute non-commercial content to registrants must submit a written request to Biostasis Technologies. Such requests will be reviewed on a case-by-case basis to ensure alignment with the mission and values of the Registry.
- International Data Transfers: If data is transferred outside the EU, we ensure compliance with GDPR requirements through mechanisms such as Standard Contractual Clauses (SCCs), Binding Corporate Rules (BCRs), or adequacy decisions.
Consent and Opt-In
By registering with the CryoRegistry, you agree to:
- Receive communications and content related to Biostasis Technologies, partner organizations, and aligned individuals.
- Allow the Registry to store your data securely for the purposes stated in this policy.
You may withdraw your consent or update your preferences at any time by contacting us at privacy@biostasistechnologies.org.
Security Measures
The CryoRegistry employs robust security measures to protect your data, including:
- Encryption of sensitive data during storage and transmission, managed through JotForm. View their security statement here.
- Restricted access to data, granted only to authorized personnel.
- Regular audits and updates to our security protocols.
Your Rights
You have the following rights regarding your data:
- Access: To request a copy of the data we hold about you.
- Correction: To request corrections to inaccurate or incomplete data.
- Deletion: To request the deletion of your data from our records.
- Objection: To object to the use of your data for certain purposes.
- Data Portability: To receive your data in a structured, commonly used, and machine-readable format.
- Withdrawal of Consent: To withdraw your consent at any time without affecting the lawfulness of processing based on consent before withdrawal.
To exercise these rights, please contact us at privacy@biostasistechnologies.org.
Data Breach Notification
In the event of a data breach, we will:
- Notify the relevant Data Protection Authority (DPA) within 72 hours of discovering the breach.
- Inform affected individuals if the breach poses a high risk to their rights or freedoms.
Updates to This Policy
We may update this Privacy and Data Sharing Policy from time to time. Any changes will be communicated to registrants via email and will be effective immediately upon posting to the CryoRegistry website.
Contact Information
For questions or concerns about this policy or the handling of your data, please contact us at: